Rett Syndrome Research Trust Partners With Vivalink to Shift Symptom Assessment Paradigms in Rett Syndrome
Rett Syndrome Research Trust Partners With Vivalink to Shift Symptom Assessment Paradigms in Rett Syndrome
Vivalink's remote patient monitoring solutions accelerate research into rare neurological disorder
Vivalink 的遠程患者監護解決方案加速了對罕見神經系統疾病的研究
CAMPBELL, Calif., April 23, 2024 /PRNewswire/ -- Vivalink, a leading provider of digital healthcare solutions, announces its collaboration with the Rett Syndrome Research Trust (RSRT) to advance research into Rett syndrome, a rare neurological disorder. As part of this partnership, Vivalink is providing its Multi-Vital ECG wearable technology and data services for heart rate and oxygen saturation monitoring to support RSRT's new VIBRANT study, aimed at assessing autonomic dysfunction in individuals with Rett syndrome.
加利福尼亞州坎貝爾，2024 年 4 月 23 日 /PRNewswire/ — 領先的數字醫療解決方案提供商 Vivalink 宣佈與 雷特綜合症研究信託基金（RSRT） 推進對雷特綜合症（一種罕見的神經系統疾病）的研究。作爲此次合作的一部分，Vivalink將提供其用於心率和血氧飽和度監測的多元心電圖可穿戴技術和數據服務，以支持RSRT的新產品 充滿活力 研究，旨在評估雷特綜合徵患者的自主神經功能障礙。
Rett syndrome is a genetic disorder affecting primarily girls, causing increased issues with speech, motor skills and autonomic dysfunction, which impacts their breathing patterns, heart rate variability, sleep and overall health. The VIBRANT study will enroll 25-35 pediatric patients and seeks to validate innovative digital solutions for monitoring these vital parameters. By leveraging Vivalink's medical-grade remote monitoring devices, RSRT aims to develop objective measures of symptoms, supporting the clinical development of potential therapeutics.
雷特綜合徵是一種遺傳性疾病，主要影響女孩，導致言語、運動技能和自主神經功能障礙增加，從而影響她們的呼吸模式、心率變異性、睡眠和整體健康狀況。VIBRANT研究將招收25-35名兒科患者，旨在驗證監測這些重要參數的創新數字解決方案。通過利用Vivalink的醫療級遠程監控設備，RSRT旨在制定客觀的症狀衡量標準，支持潛在療法的臨床開發。
"Partnering with Vivalink to measure symptoms digitally offers a number of advantages to us and the participants," said Jana von Hehn, Ph.D., Chief Scientific Officer at RSRT. "For example, the interface of the wearable devices allows families to access real-time data, providing them with valuable insights into their loved one's health. Additionally, digital technologies alleviate the burden on caregivers by automating the process of data collection, reducing the need to manually record and recall information."
RSRT首席科學官賈娜·馮·海恩博士說：“與Vivalink合作以數字方式測量症狀爲我們和參與者帶來了許多好處。”“例如，可穿戴設備的接口允許家庭訪問實時數據，爲他們提供有關親人健康狀況的寶貴見解。此外，數字技術通過自動化數據收集過程來減輕護理人員的負擔，減少了手動記錄和調用信息的需求。”
Vivalink's advanced wearable devices provide an important opportunity to expedite drug development in the pursuit of a cure for Rett Syndrome. These devices offer up to 14-day continuous real-time monitoring of parameters such as heart rate variability, respiratory rate, step count, activity level and posture, providing valuable insights into the health and well-being of individuals with Rett Syndrome. Not only do these devices permit monitoring of symptoms that are not easily observed or quantified, they also provide the potential to develop early predictive biomarkers of disease-modifying therapeutics. By contributing to RSRT's research efforts, Vivalink aims to accelerate the development of effective treatments for this debilitating disorder.
Vivalink的先進可穿戴設備爲加快藥物開發以尋求治療雷特綜合症的方法提供了重要機會。這些設備可連續實時監測心率變異性、呼吸頻率、步數、活動水平和姿勢等參數，爲雷特綜合症患者的健康和福祉提供寶貴的見解。這些設備不僅可以監測不易觀察或量化的症狀，而且還爲開發疾病改善療法的早期預測性生物標誌物提供了潛力。通過爲RSRT的研究工作做出貢獻，Vivalink旨在加速開發針對這種使人衰弱的疾病的有效治療方法。
"We are excited to partner with the Rett Syndrome Research Trust in their pioneering study," said Aaron Timm, Chief Commercial Officer at Vivalink. "We hope to empower researchers with the tools they need to make meaningful advancements in understanding and treating Rett syndrome."
Vivalink首席商務官亞倫·蒂姆表示：“我們很高興能與雷特綜合症研究信託基金合作進行他們的開創性研究。”“我們希望爲研究人員提供所需的工具，讓他們在理解和治療雷特綜合症方面取得有意義的進展。”
For more information about Vivalink's sensors, visit .
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About Vivalink
Vivalink is a provider of digital healthcare solutions for virtual patient care and decentralized clinical trials. We leverage unique physiology-optimized medical wearable sensors and software services to enable a deeper and more clinical understanding between provider and patient.
關於 Vivalink
Vivalink是爲虛擬患者護理和分散式臨床試驗提供數字醫療保健解決方案的提供商。我們利用獨特的生理學優化的醫用可穿戴傳感器和軟件服務，使提供者和患者之間能夠更深入、更深入地了解臨床情況。
About Rett Syndrome Research Trust
RSRT is the patient advocacy organization working to cure Rett syndrome. As the largest funder of Rett syndrome research worldwide, RSRT has played a vital role in initiating and evolving the trajectory of progress toward a cure. All genetic therapies in development by biopharmaceutical companies have leveraged discoveries and resources made possible by RSRT. Learn more at reverserett.org.
關於雷特綜合症研究信託基金
RSRT是致力於治癒雷特綜合徵的患者權益組織。作爲全球雷特綜合徵研究的最大資助者，RSRT在啓動和發展治療進展軌跡方面發揮了至關重要的作用。生物製藥公司開發的所有基因療法都利用了RSRT所帶來的發現和資源。要了解更多，請訪問 reverserett.or。
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SOURCE Vivalink
來源 Vivalink
譯文內容由第三人軟體翻譯。